Thursday, April 21, 2016

Will we be the lucky ones....


I know it's not just New Zealand where there is debates happening about medical marijuana, I for one, know that if I had a choice of taking medical marijuana or the 40+ pills I take a day now, which way I would go. I am over all the bull-crap with it, even doctors admit they would hand it out if they could. The laws need to change and at least be offered to trial for people with CRPS. If you don't agree that is fine as well, as you would just say no to a trial. What really annoys me is that we are mostly adults, yet we can not make a decision about our lives, why do people have to suffer because of companies like Pharmac who know they will lose out of thousands of dollars a year if this goes ahead. I am glad to see some people getting it, not for CRPS mind you, but for other illnesses, I would say CRPS will be right down the line even if it does get approved. CRPS has a high high suicide rate, and who blames them, who wants to live a life in pain all day, and be bed ridden and have no life, and no there is no cure..... but slowly the world is changing, so just maybe we can start feeling a little more positive that we might in our generation be one of the ones who get to try it. Oh and those who think it is about getting high, this is not the case with medical marijuana, it is a pain relief.

Anyway here is an article written by a man named Jason, who has CRPS, first is a little introduction about him and then he writes a great article about medical marijuana... Thank you Jason :)

As a disabled Army veteran Jason has been through years of therapy and treatment and he has seen the toll prescription pain medications can take on you and your family. Now years later and an advocate for Medical Marijuana he is the founder of MedicalMarijuanaHelp.com a website dedicated to providing accurate information on Medical Marijuana uses, the laws, and the strains. He is a firm believer that marijuana can help millions of people and deserves its proper place in mainstream medicine.




Put an End to the Insane Pain Please

Imagine your usual everyday routine for a minute, think of all the things you must accomplish, the errands that need to be ran and the work that needs to be done. I am sure you are already thinking there are not enough hours in the day to achieve the to-do list you set out to tackle each day but somehow manage to get it done.  What if that daily routine was suddenly interrupted due to an injury, one that you expect to recover from within specific set of time because the doctors have a treatment plan that is going to fix it right back up.
What happens when that time expires and you have healed but left with intense pain at the site and around the area of where the injury happened? Most of the time you are told that the site pain will go away, it is normal for it to experience some discomfort, it's just part of the healing process. After you have heard that saying a few dozen times, it gets old fast because you just want someone to listen to what is going on. You know that this amount of pain is not normal and that you should be better by now, you have done everything the doctor asked you to, yet you're not.
Anyone who has ever had to live with on-going pain that lasts for more than three months knows that it can become one of most trying times in someone's life. Whether the pain resulted from an injury that landed you in a cast, surgery or burn, the fact of the matter is that your pain is real, and it's not going away. 
When you finally get the doctor to listen and understand that this is more than the normal pain from the fracture that you had a year ago, the feeling of relief is overwhelming, you have a doctor who is listening and ready to figure this pain out. A series of tests ran, several labs and even medical imaging like an x-ray, MRI or bone scan is completed, yet the doctors still do not see anything that is causing this, they are either puzzled or frustrated from having no answer, so you become their test monkey. They have you try every medication under the sun to figure out how to control the pain and identify the root cause. Then finally the doctors see you for a check-up, your pain still present and they finally say they think they have determined the cause of your pain and tell you that you have Complex Regional Pain Syndrome (CRPS). You are so happy to have an answer that you do not stop to think about what the doctor has just told you, and you are eager to start the treatment process and finally end this pain once and for all.
The doctor then tells you that although we believe you have CRPS; we are not sure why you have it or how to treat it, that all they can do is help to get the pain down and manageable. Your happiness of knowing what is going on has just been stripped away from you as you hear this information. The same feelings return, the cycles of medication trials continue and you feel as if you have lost you thru all of this. 
What if the medical marijuana world spoke and said they had been listening to us the whole time, that they are eager to help find a solution to your pain and that they will find one that works. Well that is just what they are saying and doing especially in the recent years, the research and studies available are turning people's opinions around on medical marijuana.  In fact, Dr. Sanjay Gupta, who was highly opposed to the use of marijuana with in the medical community and those with CRPS, has come forward to apologize for making such a statement without giving the proper attention to the research. In August 2013 Dr. Gupta said he had changed his view on medical marijuana completely after doing further research, spending time with those that used cannabis as a there medication and reading medical documents. What he found was that marijuana is a great pain medication that lacks the addictive properties as defined by the medical industries. He discovered that to study marijuana benefits one must jump through double standard hoops and this is why we do not hear about the benefits of marijuana. 
Dr. Gupta had stated that it was unreal to see our society backing a drug that kills someone every 19 minutes from overdosing on the medication. There are too many people dying from the poppy plant and with the record numbers of death from it, we are seeing doctors backing the support for medical marijuana for the treatment of pain and other conditions. 76% of physicians agreed that they would rather treat a patient with marijuana than an opiate but despite the benefits the laws prevent this, forcing them to prescribe medications that kill. The medical world is finally listening; we soon may see relief after all for pain related to CRPS. 
Will be interested to hear thoughts and opinions on this topic thanks :)

Thursday, March 31, 2016

Just some info about CRPS...


I must admit I tend to avoid talking CRPS on here, which is really quite silly considering CRPS is my life 24/7, so I may start adding some articles on here so first of we have this from "Burning Nights" in the UK. Click on the link, to read more about it.
Infographic: An Exercise Guide for People with Limited Mobility
As any person suffering from CRPS knows, every day is a physical struggle and activities which are routine for most people don’t come easily. Getting sufficient exercise can be an especially difficult task for people with CRPS due to the physical strain that is likely to be heaped on top of the chronic pain that already exists. This fear of doing further damage to the body, along with a lack of self-belief or motivation, can act as a major deterrent to exercising.
However, there are many exercises that can be done by chronic pain sufferers which not only are perfectly safe, but will also be hugely beneficial in strengthening the body so that it becomes more resistant to chronic pain. There is also plenty of tailor-made equipment for people with limited mobility who wish to exercise, such as a cardiovascular exercise bike and a wheelchair multi-gym.
As well as the physical benefits it provides, exercising can also make lasting psychological changes to the life of a person with chronic pain. Once they discover capabilities they never thought they had, they can feel a surge of self-confidence and a real sense of achievement. It can also open doors to making new friends through meeting like-minded people undertaking the same experience.
Check out this really cool and inspirational infographic from UK-based chronic pain charity Burning Nights (http://www.burningnightscrps.org/) to see more about exercising for people with conditions such as CRPS.



Friday, March 25, 2016

Easter Weekend...


Happy Easter one and all, we don't have many plans, which is good cause the weather does not look the best, hopefully we can go to the Farmers Market in Tauranga then might go and have a look at the beach, nothing nicer than a beach after a storm. Chris might be coming down for a couple of days not sure yet though. And hopefully a BBQ on Monday night with Steph and Rob. and Chris if he is still here.

Daylight saving ends next weekend here, (the first Sunday in April) - bugga that really means Autumn is well and truly here, can't wait till Spring, for the last 5 years we have spent 2-3 weeks of winter in Aussie at the Gold Coast, but not this year :(. It's amazing spending a few weeks away out of winter how it makes the season seem so much shorter, oh well next year it will be 4 weeks :).


Food, have been doing a lot of thinking about food lately and in which way I want to go.... I am not doing to bad food wise, but need to be a little stricter in some areas, well it is a bit like chalk and cheese in what I am thinking - either going strict high protein low carb, or vegetarian, I love my meat though, but then I don't know if I love it enough to eat it, when I know what animals go through. Also it goes along with my beliefs of cruelty free makeup, not purchasing leather, not supporting things like Seaworld..... it also means I will have to force myself to eat more verge's cause lets face it, I know I do not eat near enough veggies. Anyway I have decided to make this decision over the next few days. I know losing weight will not cure the CRPS, but when you add obesity onto chronic pain, it makes it worse thats a fact, simple as..... I have done a lot of research with food and chronic pain, and being a vegetarian seems to be what most research shows will work with CRPS. Whatever I decide it will be slow transitioning change. Anyway more on that on the next post when I have made the final decision :)

Ohhhhh something else exciting is going to happen, and hopefully sooner rather than later, I am going to be getting another door to the nail room, yip a door, well what is so exciting I hear you say about a door, well the door is an outside door - yip so people need not come into the house anymore, and it also means I don't need to stress about people and the dogs, not that anyone has said anything and they all like the dogs apart from 2 clients who I lock the dogs away for, which isn't an issue. But I am trying to make it as professional as I can. Once the door is in, I can decorate it, so this weekend I am going to start planning the colours and what I want, and what furniture I need.... I am also thinking of selling some stuff as add on's like cuticle oil, hand creams and pedicure stuff. I will also think seriously about doing pedicures as I gat asked quite a bit about it. 

Anyway thats it from me for now.... if you are going away for the weekend, be careful on the roads. And stay safe and don't forget to smile it is contagious :)

Oh and if you have any colour idea's or any thoughts on a nail salon room place them here, like what you would like in there, a coffee machine, cold water.... :)


Thursday, March 17, 2016

Has it really been that long......Surly not!


Well I suppose it must be as the calendars don't lie, I am talking about since my last post :)

Anyway not much has been happening, not weighing till the end or the beginning of each month, whenever I remember first - so no updates there :)

Changing of seasons, does not do my CRPS any favours, adjusting to the temperature change in the mornings and nights, means the pain is on the increase till my CRPS gets used to it.

Work, man that seems weird to be saying work, (yes it is only part time and it is working from home in my own business but.....), anyway work is going good. I can now do 2 clients a day and not have too much pain, I have tried a couple of times with 3 clients a day but that is not really a go yet, it is not just the pain but also the concentration with the meds etc, which is also making it pretty difficult. So I need to just focus on 2 a day for now... with maybe the odd day with 3 so I can slowly adjust. But I am still on target to be off ACC by the end of the year roughly, my goal for the end of May/mid June is to be doing 3 clients a day (and not everyday we are talking, but maybe 2 - 3 days a week), so I do not need to stress to much about it. Ideally my goal for the end of 2016, is to be doing  4 - 5 clients a day, three days a week, and 2 - 3 clients a day 2 days a week. Speaking of work, the OT (Occupational Therapist) has been and we trialled a couple of wrist things but they did not work, I also got to trial a chair and some cushions to help with the haemorrhoids, finally decided on what one to keep and I have to say it has been amazing, no the constipation is still there, doubt that will ever change while on the meds I am on, but the bleeding every day has stopped and my butt is not nearly as sore anymore. So not getting to excited yet but I think we could be on to a winner here, this will also mean that I will be able to sit for longer periods in the chair which will mean more clients in a day. 

Hmmmm what else, the puppies are doing well, David is doing well.... must admit am feeling a little sad we are not going to Aussie this year, it gave us something to look forward too.... but we are thinking of going to Wellington for a few days, may look at taking a week off and driving down to Wellington, stopping along the way down there for a night, then spend 4 or so days there and travel back stopping again for a night somewhere. Time will tell :)

Anyway thats it from me for now, catch you all later, have an awesome weekend :)

Stay safe and keep smiling :)

Friday, March 4, 2016

The word 'fail/failure/failed'....


The word 'Failure' that I wrote in the previous post, was in no way a negative word, like I said it was just a piddle or plop, by no means was I disappointed with not reaching my goal of 5.6lbs by 0.2lbs, but my goal is 5.6lbs so in that respect it meant I failed, the word 'fail/failure/failed' to me, means I need to push myself that little bit harder next time, to me it's a challenge word.... Yes I lost 5.4lbs, but my goal is 5.6lbs, so I focus on that, or I will become to relaxed and next month if it is only 5lbs, I might think that is good enough, but it won't be cause I need a goal, not a guide. If you get what I mean :). Oh and weigh in is at then end of the month or the 1st of the month, which ever day I remember ;).

Ok so onto other things, well not a lot, yesterday I did my first day of 3 clients in a day, paying for it today so today I have kept it free to let the wrists recover a little. ACC have purchased me a new desk chair and a cushion for me haemorrhoids, so hopefully that will help in the area of my butt, when I sit for longer periods of time :)

Dogs got groomed last Monday, they were getting to hot throughout the day, but then of course what happens Tuesday it gets colder again, just cant win, and it was the first day of Autumn, it can't be Autumn yet I have not had enough use of the deck yet - hopefully a few warmer days will happen soon :)

Oh yeah, we have had a few deaths this year from some amazing people, singers like David Bowie to cricketers like 'Martin Crowe', he was my idol, when I was younger. My friends and I used to go to the cricket regularly and watch New Zealand at Eden Park in Auckland, I loved him, he was my teenage crush, sadly he passed away from cancer yesterday. At just the age of 53, to many people are dying far to young these days. 

And on that note, that is about all the news I have currently, should anything majorly exciting happen in the next day or two, I will come back and report lol

In the meantime:

Stay safe, keep smiling and have a great fantastic amazing weekend :)



Tuesday, March 1, 2016

Failed.....


Yip I failed my first month of weigh in's by.......... 0.2lbs, yip thats right a piddle, small plop whatever but hey I am not going to quibble over 0.2lbs, I lost for the month of Feb 2016 -  5.4lbs, goal is 5.6lbs a month to earn my reward of what....

Of this of course. If I lose 5.6lbs a month for 18 months, I am allowed to purchase this car, ok not this exact one but one very similar. (oh unless my car ends it's life sooner than 18 months, then we might have to come to a deal)


So apart from that not a lot has been happening, working, oh do you know how much I love that word working, ok it's only part time but hey its a job, I have to get up, dress nicely, do makeup etc and look and be presentable so to me thats a job, even if it is only 2 or 3 hours a day and only a couple of days a week. 

Not a lot new, the puppies had a haircut yesterday, here they are feeling a little tired out, Chico has been finding the heat really hard.... here we have Rusty with a wet mouth after his huge drink, and below Miss Chico looking ever so beautiful :)



So anyway like I said not a lot has been happening, need to go and finish my nails now as I have a client later today.

'Stay safe and keep smiling'

Thursday, February 18, 2016

Whoops a day late.....

Ok a day late, not a lot to report, except I have set myself a long long long challenge, I so want the car I showed in the last post, and decided if I want it, I need to earn it - so challenge is to lose 100 lbs, when I have lost it I am then allowed to get the car. So we are looking long term here prob about 18 months or so, which was when I was going to replace it anyway, but prob was not going to be a VW beetle. By then the business will be up and running properly as well. The business is starting to really pick up now, it's getting exciting :)

Have decided on the weekend I will change my blog around and I am going to coincide my goal with some youtubes.

Today is/was my birthday, had a great day, David gave me some money for a haircut, and Steph gave me this cool water fountain thing, I will take a photo tomorrow of it. Chris will give me his when I see him next. We wet out for lunch today, well David and I, Steph and Rob, was really nice :)

How I am going to do all this. I will discuss in my next entry, it also means I will be mush fitter and healthier for our trip next year as well.

Anyway that's it for now, talk more on Sunday :)

Keep Smiling and Stay Safe Jaxx :)